♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ Today is Rare Genes Day… I should probably make a post about the several rare genetic conditions and diseases I deal with daily like I’ve done so many times in the past. But this year, all I can think about on this day is how… Continue reading My Wish For My Fellow Rare Disease Warriors✨
The Last Year of My Life..
This story is complicated and has been going on for a year so I will warn you it’s pretty long. I suppose I’ll just start from the beginning and if you are interested in the details —here’s the last year of my life..♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ Fevers Starting… Continue reading The Last Year of My Life..
How to Grieve a Friend♥
This post is very personal and it has taken me months to write this and even longer to actually post. Months of painsomnia suddenly with no one to turn to for random silly conversations or heart to hearts at 3am like we had done for the past four years. More than two years now without… Continue reading How to Grieve a Friend♥
How a Shelter Pitbull Rescued Me
The day I met Addie Leaving the shelter What are toys? First day home & the Dive starts to come out ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ On June 8th, 2013 (exactly 4 years ago today!) Kyle and I went to the humane society to pick out our first dog together.… Continue reading How a Shelter Pitbull Rescued Me
Dear Addie..
Dear Addie, My precious baby girl, my sidekick, my guardian Angel, my very best friend, the one who selflessly saves me daily —especially over the last four months when I officially lost my seizure free status and my seizures came back with brand new uncontrollable/unavoidable triggers. My perfect Addie who knows my body better than… Continue reading Dear Addie..
To the Woman Who Helped Make Me, Me:
Gram, I can’t believe it’s been 14 years without you. Some days it feels like so much longer but then I do something and I’m reminded of how much you shaped exactly who I am today. You are the reason for so much of who I have become. Every time I’m baking I think of… Continue reading To the Woman Who Helped Make Me, Me:
Marry the Man..
Marry the man who will put your new puppy in his first Christmas pjs AND do a full photoshoot without you even asking while you are downstairs taking care of your other injured pup just because he wants to make you smile.🐶🎄🥰 I’m not sure how you find a man like this because I’m pretty… Continue reading Marry the Man..
Long Overdue Medical Update see
Where to start... Life has been pretty complicated the last few months so I figure the best way to explain everything is with a list so hopefully it's easier to understand. I'm also going to include add more links on my About My Conditions page with information about my newest diagnoses in case anyone wants to… Continue reading Long Overdue Medical Update see
Love Letter to My Friends
For lots of people with chronic illness receiving a diagnosis & finding out that there is no cure normally results in many friends walking away. Some get overwhelmed by the seriousness of what's happening. Others simply have no idea what to say to you anymore and get sick of trying to make plans with you… Continue reading Love Letter to My Friends
Medical/Life Update
When I started this site I had all intentions of it becoming an easier way for me to keep others up to date and an easier way for me to express myself. But chronic illnesss has other ideas and the last few months have made that rather complicated. I don't even know how many half written… Continue reading Medical/Life Update
Simply Macy 